Katie Budris
  • Home
  • Writer
    • Poetry
    • News
  • Dancer
    • Dance Resume
    • Dance Photos/Videos
    • The Lady Hoofers
  • Survivor
    • My Diagnosis
    • Blog
  • Connect

Blog | a survivor's story

1 year

5/10/2020

0 Comments

 
1 year cancer-free.
​And counting.
Picture
0 Comments

The End... Sort Of

8/5/2019

0 Comments

 
Picture
Yesterday, I turned 37, and today I received my final radiation marking the end of my active treatment for breast cancer. Compared to chemo and surgery, radiation was a breeze (just time consuming - every weekday for six weeks!) My skin irritation isn't nearly as bad as I anticipated, so I'll keep applying ointment and watching it peel for a few weeks as things continue to heal. ​

I've been declared "no evidence of disease" and my "active treatment" is over, but something I never realized before going through this myself is that my experience with cancer is still not over. I'll go for follow ups every 6 months for the next 2 years with each of my oncologists (medical, surgical, and radiation). I've started seeing a cardiologist because chemo seems to have slowed down my heart rate (nothing that any doctor seems too concerned about, but not normal for me, so something to monitor and hopefully regulate with medication). I may need physical therapy on and off to prevent lymphedema (swelling in my arm) because of the lymph nodes I had removed. In a week, I'll begin taking a hormone therapy pill, which can come with a variety of side effects. The goal is to continue taking it, or another version of hormone therapy, for 5-10 years to lower my risk of recurrence. After months of low exercise, it's going to take some time to get back to my "normal" self, and with the heart rate changes and some lingering shortness of breath, it could be a challenge.

​I'm starting to understand why cancer survivors talk about "the new normal" after treatment. My body has been through a lot, and will continue to adjust and recover. I'm ready for this phase, and whatever challenges it brings, I'm grateful cancer cells aren't a part of it. 
​

0 Comments

N.E.D. - No Evidence of Disease

6/12/2019

0 Comments

 
Lots to update, but the most important thing is that since my surgery last month, my status is now N.E.D. - no evidence of disease! This means that the surgeon removed all the cancerous cells that could be seen on imaging (the primary tumor, a tiny satellite tumor, and 2 cancerous lymph nodes). The term essentially means the same thing as complete remission or complete response. Doctors generally hesitate to use the word "cured" because they never know if microscopic cells are still present and the cancer may return, but to the best of their knowledge, I am currently cancer-free. 

And yet, my treatment is not over. As I said in my last post, the surgeon removed a few lymph nodes during surgery, and then a few more. With two positive nodes, she wanted to ensure it would be all out and no lingering cancer cells would continue traveling through my lymph system to other areas of my body. She took out a total of 17 lymph nodes, which means I am at life-long risk of lymphedema (swelling in my left arm/side/breast) and need some physical therapy to loosen up the tightness in my arm and armpit (called cording or axillary web syndrome). Lymphedema isn't entirely preventable, but there are things I can do to keep the risk low, and if I do develop it, physical therapy can help lessen any swelling. For now, I'll visit physical therapy weekly until treatment is over and I have gained full mobility again.

I also went for my radiation planning session today, during which I had CT scans done, received 5 small tattoos to mark the radiation area, and learned breath hold techniques to protect my heart during radiation. The radiation oncologist will now map out my treatment and I'll go back on the 24th for a test run. Actual radiation will begin on the 25th for 30 sessions (every weekday for 6 weeks). Because I had a lumpectomy rather than mastectomy, radiation will zap any microscopic cancer or pre-cancer cells that might be lingering in the area unseen. The radiation will also cover the remaining lymph nodes in my armpit, near my collarbone, and in the center of the chest to again ensure there's nothing microscopic left.

​By early August, my active treatment will be over. I'll begin taking hormone therapy pills to reduce the risk of recurrence and will visit my oncologist every 6 months for monitoring. There is a light at the end of the tunnel!
0 Comments

    About Me

    Breast cancer survivor.

    Invasive Ductal Carcinoma, stage 2b

    ER/PR + Hormone positive, HER2-

    AC/T dose dense chemotherapy, Dec 2018-April 2019

    Lumpectomy, May 2019

    Axillary Lymph Node Dissection, 17 nodes removed, 2+

    Radiation, June-August 2019

    Tamoxifen and Lupron Hormone Therapy, August 2019 >>>

    ​Young Advocate with Living Beyond Breast Cancer, 2020-2021

    Archives

    October 2022
    May 2020
    April 2020
    August 2019
    June 2019
    May 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018

    Categories

    All
    AC Chemo
    Adriamycin
    Advocacy
    ALND
    Axillary Lymph Node Dissection
    Biopsy
    Breast Cancer
    Breast Cancer Awareness Month
    Care Team
    Chemotherapy
    Cytoxan
    Depression
    Diagnosis
    Genetic Testing
    Hormone Positive
    Hormone Therapy
    Invasive Ductal Carcinoma
    LBBC
    Living Beyond Breast Cancer
    Lumpectomy
    Lymphedema
    Lymph Node
    Mammogram
    Milestone
    MRI
    NED
    No Evidence Of Disease
    Oncologist
    Physical Therapy
    Recurrence
    Red Devil
    SAVI Seed
    Sentinel Lymph Node Dissection
    Side Effects
    SLND
    Surgery
    Surgical Drains
    Surgical Recovery
    Survivor
    Survivorship
    Taxol
    Testing

    RSS Feed

Powered by Create your own unique website with customizable templates.
  • Home
  • Writer
    • Poetry
    • News
  • Dancer
    • Dance Resume
    • Dance Photos/Videos
    • The Lady Hoofers
  • Survivor
    • My Diagnosis
    • Blog
  • Connect